In January of 2020, at the age of 12, Jonah was diagnosed with a rare brain tumor. After having it removed and undergoing multiple bouts of chemo, Jonah was left unable to walk. After lots of physiotherapy work with Maria at Kids Physio Group, he was referred to me (Coach Thor) in May of 2022, and we started training together weekly. At this point, he had regained his ability to walk but still lacked a lot of function and proper motor control on the left side of his body. He'd already come so far he was more than ready and willing to put in the work.
We started with basic motor function and re-strengthening work, but with such limited coordination on one side of his body, we quickly moved into utilizing the barbell, and Jonah fell in love. We made some incredible discoveries: heavy lifting (specifically deadlifts) had an amazing effect on his nervous system and his brains ability to regain motor control more consistently on both sides in ways he had never experienced before. I remember the first time we tried to do walking lunges he got so frustrated as he kept falling over and we didn't know if that was something he'd ever be able to do. I'll never forget the smile on his face in the middle of a workout as he realized he was doing walking lunges with a dumbbell in his hand... which is why they had to be in his workout.
Seeing me once a week wasn’t enough for him. He started coming into Raincity 2-3 times per week on his own, completing workouts that I wrote for him focused on squats, deadlifts, and bench press. Focusing on the barbell not only helped stimulate the CNS, but he was hooked on the gains as he went from a 25lb kettle bell to a 150lb barbell deadlift, a 100 pound bench press and a 135lb squat, even while the left side of his body didn’t always want to cooperate. Once in a while, he’d even do a bit of cardio, or join coach Katie for a CrossFit style workout. He took part in the #RaincityOPEN (aka CrossFit Open) with his training partner, Nik. That's is where he really discovered his love/hate relationship with burpees and dumbbell snatches... which is why they had to be in his workout.
By the summer of 2025, Jonah wanted to spend even more time in the gym and had started prepping his resume to work at Raincity during the summer. He was also preparing to be my equipment lead at the Canadian Functional Fitness National Championships. Our team couldn’t have been more excited to have Jonah around more often his shy but friendly demeanor brought nothing but joy to those around him.
At the end of June, this was all put on hold, as he began experiencing debilitating headaches and nausea. Within 48 hours, he was back in the hospital. They had found water on his brain and signs of tumor regrowth. After a couple of days of scans and surgeries, it was confirmed that the tumor was regrowing at the base of his brain stem/cerebellum - and there was nothing they could do.
I feel incredibly fortunate that Jonah was able to come in and see me on July 26 (after another round of surgery), though we were unsure how much time he had left. When I asked how the surgery went, his response was, “Last time I woke up in a hospital I was paralyzed, so this one was a breeze.” He went on to say, “Everyone around me is really sad right now, but that just feels like a waste of time.” Those words will inspire me forever.
On July 30, Jonah passed away in his bed, surrounded by his family.
Read more about Jonah and some of the things we're doing at Raincity Athletics to honor his incredible and inspiring life.
Simon ‘Thor’ Damborg
